Using open records laws for research purposes
نویسندگان
چکیده
منابع مشابه
Using Patient Medical Records for Medical Research
of research findings. Therefore, governance committees (institutional review board) have tended to take a strict position regarding medical research involving human subjects, based on the declaration of Helsinki. There are a few limitations to using EMR data as one of the first steps in identifying individuals with a specific condition and proving simple and more complex research questions. Car...
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1 addressed several issues concerning uses of patient data for medical research, which are important for general practice. The primary concern of GPs, with respect to uses of patient records, is to do nothing that jeopardises the trust of patients, which is partly based on assurances of confidentiality concerning the content of consultations. The Academy report quotes one submission in response...
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The creation of embryos for research use has drawn a great deal of criticism. It is difficult to defend an ethical distinction between what one can do to "spare" embryos and what one can do to "research" embryos. The strongest ground on which to argue against the creation of embryos for research is a symbolic one, having to do with respect for human life. Ronald Dworkin's work in Life's Dominio...
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BACKGROUND The eMERGE (electronic MEdical Records and Genomics) network, funded by the National Human Genome Research Institute, is a national consortium formed to develop, disseminate, and apply approaches to research that combine DNA biorepositories with electronic health record (EHR) systems for large-scale, high-throughput genetic research. Marshfield Clinic is one of five sites in the eMER...
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Roger Bjugn [email protected] Bettina Casati The Health Research Act requires that an internal quality assurance system be established for medical and health research. We will describe our experience of the establishment and application of such a system for provision of human diagnostic material for research purposes. In our experience, a systematic review of project documentation will in many c...
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ژورنال
عنوان ژورنال: Library & Information Science Research
سال: 2015
ISSN: 0740-8188
DOI: 10.1016/j.lisr.2015.11.006